Living well with Prostate Cancer - Part 2

Living well with Prostate Cancer - Part 2

We continue our discussion with Dr. Paul Schellhammer on prostate cancer and life thereafter. The prostate cancer panel led by Mike Scott will address how patients/advocates/caregivers can help the medical community develop new data that will provide better information on how to help patients 'live well' with prostate cancer. 

 

Panelists

Talk Recorded on May 30, 2017, 6 p.m.   EST 754 17

Hear Talk Audio




  • Anonymous User June 8, 2017, 7:04 p.m.  US/Eastern

    I have been on ADT for 15 years. As a physical therapist, I recognized the progressive loss of strength and endurance that accompanied ADT. I do have loss of muscle mass and strength and endurance, However, using regular strengthening and endurance training principles, I have managed to remain active, hiking,mountain biking, skiing, fly fishing, etc. Without the exercise, I don't think this would have been possible. I believe simple home exercise programs prescribed by physical therapists could be very effective. As far as diet, I did my own research committing myself to a plant based diet. I believe this has strengthened my resistance to the disease. I do not believe most physicians have any interest in or knowledge in good nutrition themselves to give proper advice. ...https://nutritionfacts.org/2017/06/08/how-much-nutrition-education-do-doctors-get/

  • Anonymous User May 30, 2017, 6:58 p.m.  US/Eastern

    Thank you all for letting me listen in.

  • Anonymous User May 30, 2017, 6:54 p.m.  US/Eastern

    If the support groups can't get the guys to exercise, why would one expect the MDs to be able to do it?

  • Anonymous User May 30, 2017, 6:50 p.m.  US/Eastern

    I have some success in this regard. Richard W.

  • Anonymous User May 30, 2017, 6:48 p.m.  US/Eastern

    I've called in on the number 604-563-9915 Richard Wassersug

  • Anonymous User May 30, 2017, 6:43 p.m.  US/Eastern

    I am a PC survivor who used the resources of PCRI and UCSF that has documents / CDs on ADT and proper eating. It seems to me that any Doctor should be able to at the very least develop a form of a checklist with references to some of these sites and suggest that the male consult them. As soon as diagnosed and prior thereto since I had a rising PSA I had been attending support group meetings that pointed to these sources. The Dr never suggested same as you have been talking about but it seems to me that a basic checklist could be made and given to the patient. A research oriented patient can find the resources that I am talking about. But the patient must be motivated and sadly to see I do not see too many motivated men. Just comments.

  • Anonymous User May 30, 2017, 6:42 p.m.  US/Eastern

    OK, Priya, I have just called in and would be happy to offer comments on the primary discussion about diet and exercise. I am not clear if you can actually put me on line. Richard Wassersug

  • Anonymous User May 30, 2017, 6:35 p.m.  US/Eastern

    So, if support groups can supposedly be helpful (as you guys are saying), why aren't the support groups also exercise clubs? I'd argue that those, who attend those meeting, rather listen't to lectures should go to the gym. Support groups fail if they think the "getting the word out" is good enough.

  • Anonymous User May 30, 2017, 6:32 p.m.  US/Eastern

    There are published data (out of Ann Arbor) showing that patients can be warned about PCa treatment side effects, but either don't remember being told or deny that they were told. Problems of that sort are severe and haven't been mentioned yet. Getting compliance is a big problem in general and a HUGE problem when it comes to exercise and weight control, in general. Guidelines from the MDs, I would argue, is actually a minor issue, Look at the general problem of obesity in the USA. As Tony says it is "common sense" to exercise, so why then aren't Americans exercising in general. Having the MDs telling them to exercise, isn't working very well. I'm happy to talk with all of you off line about the challenges of getting patients to act on recommendations from MDs, Moyad or otherwise. Far more people like to hear his talks and read his book than head for the gym.

  • Anonymous User May 30, 2017, 6:31 p.m.  US/Eastern

    I have COPD and get out of breath with very little effort. I also have Stage 4 PCa. What exercises can I do to keep from getting breathless?

  • Anonymous User May 30, 2017, 6:30 p.m.  US/Eastern

    I have COPD and get out of breath with very little effort. I also have Stage 4 PCa. What exercises can I do to keep from getting breathless?

  • Anonymous User May 30, 2017, 6:07 p.m.  US/Eastern

    Just to let you know, I'm listen in. Pleased to be here. Tony, We should talk about the challenges of getting patient engagement with life style interventions. Yes, exercise/diet are common sense. But it is much more difficult to get patient buy-in for reasons than been mentioned so far. Can we arrange a time to talk off line? Richard Wassersug

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    Priya Menon May 30, 2017, 6:16 p.m.  US/Eastern

    Reply: Hi Richard, Thanks for listening in. You can dial-in using 718-6646574 to ask the panel a question and discuss with them. If you have already dialed in, pls let me know the number you are using (priya@trialx.com). Thanks

  • Anonymous User May 30, 2017, 5:19 p.m.  US/Eastern

    I have Gleason 6 from a biopsy and am in no rush to have my prostate removed. When will HIFU have a CPT code so that the procedure can be covered by my insurance.

  • Anonymous User May 30, 2017, 11:35 a.m.  US/Eastern

    I have Gleason 6 (3+3) Prostate Cancer and have been on Active Surveillance since diagnosis at age 59 in December 2006! I believe there are several studies on beneficial effects of “Prostate Cancer and Exercise” in the UK and Canada especially for low-grade non-aggressive PcA as is often the case with Gleason 6! I wear a Fitbit and have been doing lots of exercise especially Spinning Classes. Any info you can share would be much appreciated. - Jim Simms Tampa, Florida

  • Anonymous User May 13, 2017, 11:14 a.m.  US/Eastern

    I have been diagnosed with one sided Prostate cancer. Would you recommend hifu-ablation, which is done already in many French, German and Swiss centers?

  • Anonymous User May 13, 2017, 11:14 a.m.  US/Eastern

    I have been diagnosed with one sided Prostate cancer. Would you recommend hifu-ablation, which is done already in many French, German and Swiss centers?

  • Anonymous User May 13, 2017, 11:10 a.m.  US/Eastern

    How do you see the future of HIFU for focal therapy of prostate cancer?