Highlights from the International Lyme and Associated Diseases (ILADS), 18th Annual Scientific Conference - Boston

Highlights from the International Lyme and Associated Diseases (ILADS), 18th Annual Scientific Conference - Boston

Lyme disease is an illness caused by the bacteria Borrelia burgdorferi, a complex microbe known as a spirochete. Lyme disease is a multi-systemic illness, if left untreated it can become a severely debilitating illness affecting the central nervous system, joints, and multiple organs, including the heart and brain. It presents in multiple-stages from: acute (early stage) to chronic (late stage or persisting) illness.

The CDC estimates over 300,000 people in the United States are diagnosed with Lyme disease each year. It is one of the fastest growing infectious diseases in the U.S. and Western Europe.

The Global Lyme Alliance is pleased to present Highlights from ILADS 18th Annual Scientific Conference, our expert panel of leading physicians will provide their insights and a summary of key data and research presented at this conference. 

The patient panel includes Jackie Bailey and Jennifer Crystal. Jackie is a Nurse Practitioner at Apheresis Associates of Northern Virginia (AANV). She has been performing physical exams on donors since 2010. She has extensive experience working as a Family Nurse Practitioner. Jennifer is a writer and educator at Boston. She is working on a memoir about her journey with chronic tick-borne illness. 

Lyme Disease talks are conducted in association with Global Lyme Alliance

 

Panelists

Talk Recorded on Jan. 31, 2018, 5 p.m. EST 2031 </> Embed

Hear Talk Audio




  • Anonymous User Feb. 2, 2018, 3:29 p.m.  US/Eastern

    I am currently listening to the Lyme talk of Jan 31. So far, I have heard much of treatment variation and co-infections, but for patients who have primarily neurological symptoms of widespread pain, cognitive deficits and other neurological symptoms, I haven't yet heard discussions regarding treatment of the remnants of long term untreated infections. Pain especially, and especially at this point in time with an evolving opioid crises, leaves these patients who are in severe pain, and have tried almost every non-drug treatment with minimal relief. These usually older patients, who in the past responded well and achieved almost normal function with pain relief medications, are now looking at a major loss of their quality of life as they are being denied pain relief medications such as opioids.

  • Anonymous User Jan. 31, 2018, 6 p.m.  US/Eastern

    Have any of the doctors seen a pattern of chronic vaginal infections in lyme patients?

  • Anonymous User Jan. 31, 2018, 5:59 p.m.  US/Eastern

    Are you a fan of pulse therapy?

  • Anonymous User Jan. 31, 2018, 5:50 p.m.  US/Eastern

    Is Lyme progressive. For example, if in the central nervous system, will seizures happen to most?

  • Anonymous User Jan. 31, 2018, 5:36 p.m.  US/Eastern

    Can you offer some insight as to whether Lyme and/or Bartonella can be transmitted sexually. I read of a study in 2014 where lyme was found to be present in semen and vsginal secretions. Any further info on this topic??? Brian

  • Anonymous User Jan. 31, 2018, 5:35 p.m.  US/Eastern

    quoting Dr. Klinghardt in Seattle: every ms, als and parkinson disease patient that`s been through that office in 5 years has tested positive for lyme... can a panelist comment?

  • Anonymous User Jan. 31, 2018, 5:14 p.m.  US/Eastern

    Ozone therapy (O3) can be very helpful when patients plateau on antibiotics. Ozone therapy has been extensively used in Europe and Israel. Dr. Shallenberger introduced O3 to the U.S. several decades ago and founded the American Academy of Ozonotherapy (http://aaot.us/). Several ILADS physicians have successfully used ozone with their patients.

  • Anonymous User Jan. 31, 2018, 5:06 p.m.  US/Eastern

    In a Jan 25th article in the Guardian, ticks are passing the SFTS virus in parts of Asia. Any chance such a virus may be at the root of ITP in lupus patients? Excerpt from article, "Forget Ebola, Sars and Zika: ticks are the next global health threat." "While only discovered in 2009, SFTS virus (severe fever with thrombocytopenia syndrome) has sparked widespread fear through much of Asia, especially in Japan where 57 people have died of the disease since 2013. Signs of the disease can range in severity from relatively mild, like fever and diarrhoea, to severe, which can include multiple organ failure"

  • Anonymous User Jan. 31, 2018, 5:04 p.m.  US/Eastern

    Are you aware of any animal studies underway to combat the persister form of Lyme disease?

  • Anonymous User Jan. 31, 2018, 5:03 p.m.  US/Eastern

    Lost connectivity. Is it on your end?

  • Anonymous User Jan. 31, 2018, 5:01 p.m.  US/Eastern

    When antibiotic therapy is no longer tolerable, what alternative therapies are recommended?

  • Anonymous User Jan. 31, 2018, 4:59 p.m.  US/Eastern

    When antibiotics are no longer tolerated, but you are still symptomatic, what other treatment alternatives can be recommended?

  • Anonymous User Jan. 31, 2018, 4:57 p.m.  US/Eastern

    Is trigeminal neuralgia a cause from Lyme and what to do about it very excruciating pain? What to do about nerve pain?

  • Anonymous User Jan. 31, 2018, 4:10 p.m.  US/Eastern

    Chronic insomnia (like can’t sleep anytime day or night). Is it reversible? What is the cause of such horrific insomnia? I have been on z-class sleeping tablets for over a year now and I desperately want to come off them, but if I don’t take them I just won’t sleep!

  • Anonymous User Jan. 31, 2018, 3:25 p.m.  US/Eastern

    What's the bulletproof treatment plan to attack all possibilities? Has research indicated that treatment may resemble something long term like TB or is research showing that it can be much simpler and shirt term but maybe with multiple modalities?

  • Anonymous User Jan. 31, 2018, 3:23 p.m.  US/Eastern

    How to differentiate nerve damage from still needing treatment with neuro Lyme and Bartonella? Anything herbal to use to lessen the leg nerve pain and hypersensitivities? For example, my husband will run my feet and all of a sudden they start to perfusely sweat. Is Lion's Mane safe to take while only on Levaquin? Read that it is an antispirochete and needs immune support but also read that Lions Mane is great for immune support. Confusing??!!?

  • Anonymous User Jan. 31, 2018, 2:13 p.m.  US/Eastern

    Do you use Biocidin/Oliverix in your treatment protocols? Beneficial? What about hyperbaric o2 treatments, successful? Any chance that soon insurance will start covering treatment?

  • Anonymous User Jan. 31, 2018, 2:11 p.m.  US/Eastern

    Underwent neuro Lyme treatment with Rocephin for 3 months. Went 6 weeks with no meds and continued to not feel well with nerve pain, mild leg weakness. Now taking Levoquin for Bartonella. Symptoms have subsided quite a bit after only 3 1/2 weeks. When I get overly emotional or nervous, my symptoms flare. Why? How do I stop it? How can one tell when treatment is complete or if there is nerve damage?

  • Anonymous User Jan. 31, 2018, 12:13 p.m.  US/Eastern

    Every time I try to go off antibiotics, I get a severe headache, neck pain, and cognitive changes. I have been on antibiotics for 7 years and feel fine while I take them, but worry what this is doing to my overall health. Any suggestions for people in this same boat?

  • Anonymous User Jan. 31, 2018, 1:20 a.m.  US/Eastern

    Can spirochettes and/or parasites live in nerve tissue causing pain without degenerative disk or osteoporosis present? Can microscopic parasites live in the brain and lungs?

  • Anonymous User Jan. 30, 2018, 11:53 p.m.  US/Eastern

    I'm a 26 year old female with extremely dibilitating pelvic pain. I was diagnosed with Lyme disease a year and a half ago but nothing seems to help my pelvic pain. I've tried many treatment routes including going to Mexico for intensive Lyme treatment. Could this be the cause of a specific co infection?

  • Anonymous User Jan. 30, 2018, 8:45 p.m.  US/Eastern

    Why don't Lyme-literate doctors recommend more herbal remedies instead of antibiotics? When our child did not respond to either oral, or IV antibiotics, her doctor had nothing else to offer. We took her to several naturopathic clinics in Germany and Mexico which eventually helped. What can US doctors offer besides antibiotics?

  • Anonymous User Jan. 30, 2018, 8:41 p.m.  US/Eastern

    Can you talk about whether there has been any progress in developing a good diagnostic lab test for Lyme? Our daughter felt progressively worse for an entire year and only after a year did a naturopathic doctor mention she "might" have Lyme. Our internist did a test early on that came back negative. We were told she had celiac disease and spent the first year visiting GI specialists.

  • Anonymous User Jan. 29, 2018, 11:26 p.m.  US/Eastern

    Could you address treatment using Hyperthermia and targeted antibiotics as well as the pros and cons of ozone IV treatments. Thank you

  • Anonymous User Jan. 29, 2018, 10:49 p.m.  US/Eastern

    I have been treated over the last 20 years, for Borrelia, Bartonella and Babesia with periodic courses of multiple antibiotics, including 8 monthes of IV Rocephin. I have also used the Cowden protocol and Dr Zhang's protocol. I may have been re-infected about 3 years ago and developed Lyme carditis which was luckily caught early and treated. I only recently feel that my digestive system has started to recover from all the antibiotics even following a strict healthy diet for many years. But I am having a flare up of fatigue, pain and cognitive symptoms. I have been trying Byron White herbs for Borellia and Bartonella and experiencing the fluey die off reactions that I'm so familiar with. Can anyone comment on that particular protocol?The Byron White herbs? I have also experienced some releif form treatment with a Rife machine. Can anyone comment on Rife treatment and TBD? Thank you

  • Anonymous User Jan. 29, 2018, 4:50 p.m.  US/Eastern

    absent evidential data to support the use of abx for lyme, why are md's continually rx'ing and over rx'ing them??

  • Anonymous User Jan. 29, 2018, 4:48 p.m.  US/Eastern

    why are antibiotics continually and constantly being prescribed when there isn't any evidential data to support their use and claims of cure for lyme. seems that they actually might do harm, etc. yet md's are determined to flood the body with them. creating cocktails of drugs and blaming the patient are often the result after dosing doesn't seem to work and when patients don't improve. can the panel comment?

  • Anonymous User Jan. 29, 2018, 12:55 p.m.  US/Eastern

    any familiarity with the successes or difficulties of a Dapsone protocol?

  • Anonymous User Jan. 28, 2018, 4:35 p.m.  US/Eastern

    Is re-testing after prolonged treatment a good way to gauge where you are in recovery? How do you know when to stop antibiotics?

  • Anonymous User Jan. 28, 2018, 4:34 p.m.  US/Eastern

    Could you please tell me the relationship between Lyme & Co-Infections with decreased sex hormone levels? I am a 28 year old female with the progesterone/estrogen profile of a post-menopausal woman.

  • Anonymous User Jan. 27, 2018, 3:32 p.m.  US/Eastern

    I am a 73 year old woman with Lyme disease for the past 35 years. I keep getting flair ups and can't get a doctor to give me long term anitbiotics. Most lyme doctors do not accept insurance so that narrows the field. Any suggestions would be so welcomed.

  • Anonymous User Jan. 26, 2018, 11:24 p.m.  US/Eastern

    Quote: November17,2017--Dr Klinghardt: We have NEVER had a single MS, AlS or Parkinson patient test negative for lyme..your thoughts ?..francie hieronymus

  • Anonymous User Jan. 26, 2018, 9:29 a.m.  US/Eastern

    Can anyone please comment on the use of rife machines as an alternative in the treatment of chronic Lyme and TBDs?

  • Anonymous User Jan. 25, 2018, 9:54 p.m.  US/Eastern

    Could you explain the problem of Bartonella causing overproduction of calcium which can lead to atherosclerosis?

  • Anonymous User Jan. 25, 2018, 2:13 p.m.  US/Eastern

    Have any of the doctors had any experience with patients who have Lyme and then developed psoriasis / psoriatic arthritis? If so, what treatment protocol have you found to be most effective? I am very reluctant to pursue treating psoriatic arthritis with immunosuppressives as I was misdiagnosed in 2009 and because very ill after 6 weeks of Enbrel.

  • Anonymous User Jan. 24, 2018, 11:51 a.m.  US/Eastern

    I would like to see addressed if there is any progress on creating and testing an accurate Lyme diagnostic test. I believe some researchers were using disease-free tick nymphs attached to the back of hands for several days then PCRing the nymphs (ground up) to detect Lyme genome.

  • Anonymous User Jan. 23, 2018, 6:34 p.m.  US/Eastern

    I am I victim of the so-called opioid epidemic. I contracted Lyme in Westchester Co, NY in the winter of1980-81, with the typical bullseye rash followed by what I thought to be the worst case of the flu possible. Nine years later, when I began having more frequent and unusual intermittent neck and arm pain, I was referred to a neurosurgeon and was scheduled for cervical spine surgery to "correct" what appeared to be "damaged cervical disks" which were causing my extremely pain. This was in 1988-89. Just prior to my surgery I was given a contrast fluoroscopy and the cervical "damage" had completely disappeared. I was then referred to a neurologist, Dr. Harriet Kotsouris. She tried every test for Lyme then available and several tests then thought to be experimental. Borderline Western Blot results and a reactive FTA-ABS test (I was negative to standard Syphilis test) prompted her to order EVPs, and a somatosensory abnormality finding led her to decide to begin a five week treatment with IV antibiotics due to my documented rash and other symptoms/test results. Minimal improvement and two additional abnormal test results prompted a second 5 week IV treatment with another antibiotic. My pain levels and body areas affected continued to spread. Eventually I had to stop working. Treatment with opioids and muscle relaxants for over 15 years allowed me to have a reasonable level of function but my pain has never abated. I am currently having vision difficulties which indicate my visual pathways are being affected. Repeat Visual EVP tests show up to a 30% variation in my sight which comes and goes. I currently believe my long term Lyme infection has affected my neurological function, and much like "phantom limb pain", this is how Lyme disease affected me, and still is. Has there been any research in this area? Unfortunately, I may soon be taken off medications and will have no recourse to treating the pain I experience daily. A considerable lack of understanding of Lyme's routes of damage in the southern US, where I now live, will make any effort I make to continue to have a decent reduction of my pain and vision issues almost impossible. I'm 66 years old. I have had no medical issues with my current meds, and have been a compliant patient with a primary care doctor who is at risk of losing his job if he continues to treat me with opioids. I am not the only Post Treatment Lyme patient in this quandary. We could use some help from the Lyme aware physicians and researchers so we can continue to live our lives as mostly functional human beings. Thank you.

  • Anonymous User Jan. 23, 2018, 10:54 a.m.  US/Eastern

    Please address sexual transmission of Lyme and other tick-borne diseases. I gave my partner both Lyme and Bartonella. He had almost no symptoms. We are both clear now after lengthy treatment. I see Dr. Raphael Stricker MD who is doing research on sexual transmission of Lyme after he realized both partners in about 1/3 of his over 2000 patients had Lyme. The secondary patient does not usually have symptoms so this is a difficult thing to realize. We are told that there is no sexual transmission of Lyme. I think that is a dangerous statement to make. The recycling of Lyme by sexual transmission can be a reason why it and other tick-borne diseases are so difficult to clear.

  • Anonymous User Jan. 23, 2018, 7:54 a.m.  US/Eastern

    Please consider putting this on YouTube afterwards, especially for the sake of curious medical professionals for whom this time slot is inconvenient. I'd like to tell my favorite PCP about this special opportunity, providing that it can be made available later via YouTube to fit their personal schedules more easily.

  • Anonymous User Jan. 22, 2018, 9:25 a.m.  US/Eastern

    What are your thoughts on the possibility of eradicating viruses that interfere with Lyme disease treatments (specifically EBV) through supportive oligonucleotide technique (SOT)?

  • Anonymous User Jan. 21, 2018, 6:22 p.m.  US/Eastern

    Are any of you using O3 (aka "activated oxygen" and "ozone") in your treatments? Ozone has been very effectively used in Europe and Israel to treat a wide range of diseases, including tick-borne pathogens. Key benefits to O3 (in addition to its effectiveness) is that organisms cannot develop resistance to it; O3 is effective against viral, bacterial, and fungal infections; and it is non-toxic and relatively inexpensive.

  • Anonymous User Jan. 21, 2018, 5:51 p.m.  US/Eastern

    I need help and keep getting bounced around doctor to doctor several don't appear to believe the disease exist. I have health insurance but what I'm finding is Lyme literate doctors don't take insurance or insurance companies do support treatments. every doctor so far immediate steers me away from the reason I am visiting them... several years of misdiagnosis and now no one will treat me, and I'm at the end of my rope.. literally...

  • Anonymous User Jan. 21, 2018, 2:59 p.m.  US/Eastern

    Are there any new treatments for lyme or any treatment trials currently ongoing? Is there a way for patient experts and advocates to crowdfund desperately needed treatment research?

  • Anonymous User Jan. 21, 2018, 12:20 p.m.  US/Eastern

    I have been very sick for years with Lyme. Would like to know , can I be a safe organ donor. I want to check that little box on the drivers license ?! Also , is their a way to donate our bodies ,when we pass away, for Lymes research?

  • Anonymous User Jan. 21, 2018, 11:34 a.m.  US/Eastern

    I have late stage neurologic Lyme. As it turned out, I had it most of my life, but only diagnosed in 2002. With the help of three doctors, including the wonderful Dr. Liegner, I can function quite well 3-4 days a week. But my Lyme care ended when I moved. I take the same meds Dr. Liegner gave me 5 years ago because so few doctors even want to take the time to learn about this disease. The greatest obstacle to getting well comes from the medical community itself and it's lack of knowledge concerning this crisis. On masse, they simply are either unaware of this particular disease at crisis levels or are consumed by their own hubris that it's something that they don't need to know. My doctor here in Key West was at the forefront of HIV care and considers himself parasite knowledgeable, but I was the one who taught him about Lyme. What plans do you know of that concerns getting out the word about Lyme to the medical community? In each state, doctors should have numbers available that they can call and get the info they need/ talk to another LLMD if necessary. If that's already available, why don't they know about it? I shouldn't have to be taking a 5 year old prescription, but where do I go? After being a Lyme patient for 16 years, I shouldn't feel so lost. Your research and knowledge simply isn't getting past the Lyme bubble everyone is working and living in? How will you educate the medical community?

  • Anonymous User Jan. 21, 2018, 6:50 a.m.  US/Eastern

    I am a landscape artist that had the misfortune of being infected on Nantucket Island during a prestigious art residency. This wish became a legacy of pain, insults and frustration. I would lik to shed light on the impact of Lyme disease in this arena. Productivity in all area of art Would Deminish if artists had limited access to natural areas of inspiration due to the threat of a his disease. .

  • Anonymous User Jan. 20, 2018, 1:12 p.m.  US/Eastern

    I had, what I now know was, a bulls eye rash for about 3-4 weeks twenty plus years ago but didn't recognize it as such at the time. About 5 years later I was diagnosed with RA and have been on an assortment of biologics and prednisone which for the most part has controlled the pain and progress of the disease. 4 years ago I was treated for a potential bone infection with IV antibiotics. I had to be off the RA Meds for many months while being treated. I never felt better! I questioned both my Rheumetologist and Infectious Disease Docs if it could be the antibiotics affecting the Lyme. Both pooh poohed the idea. I've tested negative for Lyme although I'm still highly suspicious that it's actually Lyme and misdiagnosed as RA. After all these years is it possible that I could be treated for Lyme with current protocols and see improvements or should I accept the RA diagnosis and continue to treat it with these powerful drugs. I've also heard that prednisone should never be used to treat Lyme. Is this true and why?

  • Anonymous User Jan. 19, 2018, 8 p.m.  US/Eastern

    Hello, I have had Chronic Lyme and Co Infections for 20 years.......I am 70 years old. The last 3 years I have SUDDENLY had a huge amount of Dental work needed. I brush and floss, but have been doing research and read that Lyme can cause Decay Prone Teeth. WHat do you all knw about this problem.

  • Anonymous User Jan. 19, 2018, 5:46 p.m.  US/Eastern

    Since I did no antibiotic treatments for my late stage neuropsychiatric Lyme disease and was healed by all natural IV treatments such as IV C, IV Artemesia, IV Curcumin, IV Glutathione, IV Alpha Lipoic Acid, IV silver, IV Major Autohemotherapy, along with LDi and LDA injections, chiropractic and acupuncture , yoga therapy, and other oxygen therapies, I would like to know ILADS opinion on these types of natural treatments as part of a comprehensive Lyme disease recovery protocol? Will you be looking into more inclusive therapy protocols like these in the future as recommendations with or without antibiotics?

  • Anonymous User Jan. 19, 2018, 5:19 p.m.  US/Eastern

    I am hoping that you will email the recording of this webinar to everyone. I will not have computer access that day. Many of us may wish to share Lyme info with others.

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    Priya Menon Jan. 23, 2018, 3:56 a.m.  US/Eastern

    Reply: Hi, The talk will be archived and uploaded to this page for listening at your convenience. The link to the page will be emailed to all registered participants. Thanks.

  • Anonymous User Jan. 19, 2018, 4:57 p.m.  US/Eastern

    Hi - when will the critical mass of lyme cases reach the point where we get our Presidents attention...we seem to be just spinning our wheels and need real research and treatment protocols..

  • Anonymous User Jan. 19, 2018, 4:15 p.m.  US/Eastern

    How does someone get treated after living with Lyme disease for 28 years? I just have Medi-cal coverage here in Silicon Valley. I had the classic "bulls-eye" rash near the bite site above my ankle. I did not take a picture of it, unfortunately. I did not have any symptoms initially, hence did not go to the doctor. As after almost two weeks it went away. I was referred by my primary doctor to Santa Clara Valley Medical Center's Infectious Diseases department. After almost two years, of three scattered appointments, the director there told me that they didn't believe in chronic Lyme Disease. That I could live with it, and die from something else! I am now 59 years old. I am not working now. I am chronically tired, and weak. And I have had the various syymptoms on and off, from the classic Lyme symptoms list. I was tested at iGenex Labs in Palo Alto. But the testing came back false negative. I need help finding a doctor that will treat me that takes Medi-cal. Please mention this on air, as I know I'm not alone! If possible, would someone send me an email. As I'm not sure if I'll be able to hear the on-air discussion. Thank you so much!

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    Priya Menon Jan. 23, 2018, 3:58 a.m.  US/Eastern

    Reply: Hi, The link to the archived talk will be emailed to all registered participants. Thanks.

  • Anonymous User Jan. 19, 2018, 3:53 p.m.  US/Eastern

    Neurological Lyme is interfering with my daughter's ability to learn, organize her thoughts and process information - and so much more. What can we do to help her?

  • Anonymous User Jan. 19, 2018, 3:31 p.m.  US/Eastern

    Very excited this is available. How long is the talk? I had (note past tense!) Advanced Lyme Disease for 10+ years. After two years of misdiagnose, I found a Lyme MD who put me on 14 weeks of three IV antibiotics infused five times/ day. This bumped my health back from 20-30% to 60-80%. But, I hovered there for 8 years despite following numerous antimicorbial/herbal/immune support/antiinflammatory protocols. Worked with over 100 health care providers from all disciplines. FINALLY, had a leap in progress early 2017 and back to LIVING again. However, the protocols to maintain are still very expensive and time consuming, so looking for advances to irradicate the microorganisms or otherwise reduce protocols for maintainance.

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    Priya Menon Jan. 23, 2018, 4 a.m.  US/Eastern

    Reply: Hi! Great to connect. The talk is for 60 mins. The link to the archived talk will be shared with all registered participants.

  • Anonymous User Jan. 19, 2018, 3:24 p.m.  US/Eastern

    I am so sick and tired of the medical community's ignorance about this illness. All the treatments are one big experiment. We have seen all the "major players" -that are considered LYME literate, and I have to be believe that many are in it for the money. So keep paneling on, but don't waste people's time and money any more. My daughter age 24.5 has spent the past four years, being undiagnosed for 2 of those years, and then undergoing, 6-8 months of Antibiotic therapy (IV as well as ORAL); At least on 1.5 years of Ozone therapy, six months of IVIG, 2 years of Herbal therapy, and lots and lots of other useless therapies. She has been the ideal patient....Has followed every single recommendation....and yet she has not been able to work..because her brain does not function. She graduated from an IVY League University with a 3.9 GPA...And cannot remember what she did two days ago. We have spent over $100K out of pocket over the past four years (and have insurance). I WANT THE MEDICAL COMMUNITY TO ADMIT, THAT THERE IS A MEDICAL CRISIS HERE.....THAT NOONE KNOWS HOW TO TREAT IT, and I WANT HONESTY AND INTEGRITY.

  • Anonymous User Jan. 16, 2018, 8:19 p.m.  US/Eastern

    Hi! I’ve been dealing with the effects of chronic Lyme disease for about 5 years. This summer I started light therapy. Through and IV I get blue, yellow, red and green light for 13 minutes each. I have read some research on light therapy but was wondering if you had any information on it’s effects or any treatments that are showing positive results. I have shown some improvement with this therapy and hopeful I can slowly feel better. Any information would be helpful! I just need to feel like there are options available rather than long term antibiotics.